Friday, July 17, 2009

Meeting with Dr. Wolf. Tuesday, July 14, 2009

George and I had an early drive from Fresno to San Francisco. We arrived at UCSF on time, 12:30, and had a minimum of wait. They drew blood. Dr. Wolf’s assistant, Dr. Wieduwilt, MD,PhD. went over my medical history. Dr. Wolf then spent over 50 minutes with us – I know because we turned over the 90 minute cassette tape we were recording on! The scheduling nurse described all the hoops we now have to jump through: more tests, more drugs, more trips to San Francisco, and more signatures. We’d like to be on the fast track, because that means less chemo therapy here. It was a great thing that we had read all the current literature here, because we were fairly well prepared for the news and procedure. It was an exhausting day, I was glad we didn’t have to drive home that night.
We stayed the night in a refurbished old hotel at the east end of Golden Gate Park, quite nice. We had a relaxing meal then returned to the hotel. We drove home the next day.


David said...

Hi Susan,

After reading about your experiences with multiple myeloma on your “My Oh My Multiple Myeloma” blog and following the types of medicines and treatment you have taken, I am writing to see if you’re interested in participating in a study focused on healthcare access issues multiple myeloma patients face. This study is being conducted by Avalere Health, with support from the Leukemia and Lymphoma Society (LLS).

My name is David Curameng, and I am a research analyst at Avalere Health. As part of the study, we are working with LLS to try to gain a better understanding of the treatment access issues (e.g., treatment costs, transportation concerns, and shortage of doctors in the area) multiple myeloma patients face when accessing the healthcare system. We are interviewing patients about their experiences and would like to speak with you further to see if you qualify for the study. After reading your blog entries, I believe you are a well fitted candidate that can help others by participating in this research. This research will be instrumental in helping healthcare stakeholders and policymakers understand the critical issues multiple myeloma patients face when accessing care.

If you are able to participate, please contact me via e-mail, and I will be in touch shortly.

Thank you for your willingness to learn more about our study, with support from LLS. Please let me know if you have any questions and we hope to hear from you soon.


David Curameng
Research Analyst
Avalere Health
1350 Connecticut Ave. NW
Suite 900
Washington, DC 20036
202.459.6318 (tel)
202.467.4455 (fax)